Wednesday, February 1, 2012

T+365: Recovered at Last!


Today marks exactly one year since my SLAD-R surgery with Dr. Gerald Berke on February 1st, 2011.  I’m thrilled to have finally reached this milestone and what a year it’s been. I was expecting a four to six month recovery, was hoping for a two to three month recovery, and wound up with a year long recovery. While this has been a lot harder and took a lot longer than expected, the result is worth it.

You can listen to the result yourself here:



I would now characterize my voice as near normal, perhaps 95% of normal.  It's now fully functional and doesn't impede me in any way. It's loud and for the most part clear.  I can yell if I need to, and no longer have trouble in noisy environments.

The reason I don't put it at 100% is because it's not quite as smooth or melodious as I would like it to be. The squeekiness that I was experiencing over the past few months has almost completely gone away, but I still get it here or there with a word or two.  That's been happening less and less, and I expect it will go away completely.  In the mornings, I need to speak for a few minutes to "warm up" my voice before it gets to an optimal state.  Late at night or especially after a couple of drinks, my voice can start to give out a little.

The scar has healed well.
I also can’t really sing very well, but then again I never really could. While it would be nice to sound like Michael BublĂ©, I’ll have to leave that to another lifetime.  For those of you that are singers, be aware that this operation will probably not do a great job of restoring your singing voice.

The neck pain that I reported a few months ago has also all but disappeared.  I still don’t know if it was related to the operation or not.  The scar has healed almost perfectly and is difficult to see.  A little bit of numbness does persist in the area above the incision and below my chin, but it doesn’t bother me.  That part of my neck is still a bit flabbier than I’d like it to be, but maybe that’s just because I'm older, and hopefully it will regain some tone with time.

The best news of all is that I have now gone for 365 days without so much as a single voice spasm. Spasmodic dysphonia is not a fun thing to have.  The road I took to get relief was a long one and not always an easy one, but I feel it was the right one.  Hats off to Dr. Berke and his team!  The work they do is truly amazing, and something that I’ll be appreciative of for a long time to come.

Going forward, I will probably only update this blog at semi annual or annual intervals, unless there is something noteworthy to report along the way.

Please feel free to reach out to me at any time if you have questions, either by leaving a comment on this blog or by contacting me via the Spasmodic Dysphonia Group on Facebook, which is another worthwhile resource for people with SD.

5 comments:

  1. Hi, you sound great!! Congrats on a successful surgery :) I have a question, did you have voice tremors before surgery? I have the adductor type since i was 15 with significant tremors (now 24 y/o) and botox does not relieve them. Wondering if this could be a better choice.

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    Replies
    1. Hi - No, I didn't have voice tremors. I'm not the expert on this but I've heard that the surgery doesn't help in that area, unfortunately. - Erik

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  2. I have abductor SD and I am interested in the SLAD/R surgery. Do you know if it works for abductor SD?

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    Replies
    1. Hi - Unfortunately, SLAD/R is for adductor only, if I'm not mistaken. - Erik

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